Saturday, June 29, 2013

insert foot here ...


 I've made a mistake
wording and vent
on a previous post

I shouldn't have mentioned
spectrum/function
always hearing from professionals
"high or low"
comparing children

The spectrum doesn't matter
it was not meant
as a judgment

I was upset
that I have put so much
effort into my
playgroup
only to have no one show up
 for the first two weeks
then ... to watch Al just
play all alone
while the older crowd went to play

I had really high hopes for the playgroup
to find a kiddo 
just like my Al
a match
a friend 

I am learning
that there will be
similarities and differences
on and off spectrum
just as no two kids will be alike
neither is autism
there are strengths and weakness in everyone
everywhere on the spectrum

my post was not intended to
measure your child or compared them to mine
it was truly me
just trying to find where we
 "fit-in"

please know how truly
sorry i am if had offended you

Saturday, June 22, 2013

Gulp-Sigh-Tear-Breathe

I've been struggling with where WE belong

We started our playgroup
 Al sat all alone in the sandbox
the group was much older than I had expected
also with different needs on the "spectrum"
Same Day
Now on to ... gymnastics
Al has moved up from tiny tumblers to boy's level one
all neuro-typical boys
Al is all over the place
can't wait in line - jumping into pits - not following directions
"semi-typical" boy behavior
tough as a Mom to sit on the bleachers and know ...
I can feel what the other parents are thinking
"Wow, that kids is really out of control"
--never mind-- 
They weren't thinking
I actually heard that or something very close to it
being said right behind me
as Al took cuts once again
I want to scream
thanks for talking shit about my kid
sorry your kid had to wait one extra second
because my kid couldn't

I feel stuck
on one hand it's nice hearing that Al doesn't seem autistic
he MUST be very HIGH functioning 
on the other hand --- it sucks hearing that he
"Seems so NORMAL or doesn't
 look Autistic"

He is normal - He is my son

Gulp- Tear -Gulp -Sigh
Breathe -- over it
  

Saturday, June 15, 2013

more therapy!?


we now have ... drum roll ...

eight different therapy appointments per week
and two social skills group
for the remainder of the summer
i know - you are silently judging me
it's too much and why am i putting my child through this
why and am i putting myself through this

this is the kindergarten crunch
we have a limited amount of time before school
to give him the very best start
this is what was recommended by each of our physicians

the most important fact
Al is enjoying himself 
 looks forward to seeing his teachers and therapist

each therapy is "play based"
he is gaining confident and feeling successful
acquirng new skills and learning so much

Happy Al = Happy Momma
(the rest of the details will work themselves out)